Introducing the OM Adventure Scholarship!

Happy New Year!

The year end gives us time to reflect on the year, and take a big breath to settle the mind and return to a positive state of being; whether we experienced something tragic, enlightening, or downright dull. 



With the New Year, comes the view of the horizon. It’s time to look forward to a better future and plan to take action.
 


At OM we look at the New Year as an opportunity to reengage, reignite, and re-imagine the future.
 


To start, I and the Executive and Advisory Boards will be having a retreat on MLK weekend. We will be reflecting on our accomplishments, examining our current state, and planning for a big future! These are exciting times at OM! And in the spirit of reigniting the spirit, I am excited to introduce a brand new program:
 


Introducing the Outdoor Mindset Adventure Scholarship!


The power of the outdoors to lift our spirits, to clear our thoughts and center our state of being, in history, was a gift that only gods could give. For many of us, the time we spend outside and in nature defines our character and how we view the world. We may dream of climbing that special peak, travelling to that amazing place and living that once in a lifetime experience. These experiences bring strangers together and friends closer, with memories and feelings that will be shared for the rest of their lives. It is at these precise moments when you take a deep breath and say, “this is what life is all about”!
 


Outdoor Mindset thrives on those moments and understands that the impact these extraordinary experiences have on our health and wellbeing is priceless! OM never intends to compete with the gods, but perhaps we can help provide the funding for you and a friend to get closer to experiencing a special peak, an amazing place and a once in a lifetime experience – an item on your bucket list that you have always wanted to complete.
 


Our goal with the new Adventure Scholarship is to help support OM’s mission to enhance the quality of life of our members, engage our members and encourage our community to connect with one another and get outside and live big!
 


El Chalten, Patagonia. Put it on your Adventure Scholarship
bucket list!

OM will be awarding at least one Adventure Scholarship per quarter. We will be awarding at least $500 per Adventure Scholarship! Applications will be accepted starting today, and applicants will be given until February 12th, to submit. Applicants must be an OM member, and the Adventure Scholarship must be used for an outdoor activity with at least one other OM member. Keep in mind, anyone can become an OM member and it’s FREE! And most importantly, the Adventure Scholarship awardee must have a great time!!!
 


Please click here to view the official rules and apply. Good luck!

 

Don’t forget to Participate, Engage and Promote! 
 


I can’t wait to see you outside and look forward to sharing more exciting news in the coming months!


~Sean

Meet-Up Spotlight: Ohio's Maggie

Meet Maggie, our Ohio Meet-Up group leader. Her connection to Outdoor Mindset runs deep and we're fortunate to have her as part of the OM family. Here she tells her story about her neurological history that has an amazing outcome... because it brought her to our organization!

"I remember one day when I was probably a junior or senior in high school. I came home from school in severe pain and instead of going straight to bed or taking a hot bath, my anger got the better of me and I decided to go for a run. I was so sick and tired of the constant pain and the feeling that I couldn't really be myself. I was fed up and pissed off. So I put on my running shoes and ran.

I don't remember running, but I do remember stumbling into the house about twenty minutes later, doubled over, pressing the palms of my hands into my forehead as hard as I could to keep myself from vomiting. I could hardly see; everything was too bright and blurry. I couldn't talk, because my own voice triggered a chain reaction, starting with the nerves behind my right eye and radiating down my spine. I couldn't eat, because the nausea made it impossible to swallow. At that point, there was nothing I could do but crawl in bed and wait it out. The next day would be the same, but about 15 hours of sleep might give me the energy it would take to make it through school the next day.

It's strange to look back over the last 10-15 years and realize how much has changed. In the days before I found an effective treatment, it was hard to even imagine spending more than a day without pain or nausea. Now, my bad days are few and far between, and I feel like I finally have the ability to be myself and do the things I want to do.

I was finally diagnosed with migraine after my family doctor put the pieces of my genetic puzzle together: my dad had mostly recovered, but had suffered from severe migraine when he was younger, and while my symptoms presented differently, they all pointed to migraine. At the time, I didn't really understand what that meant. I later learned that migraine is actually a brain disease that affects the entire central nervous system, and it explained the severe stomach pain and nausea I'd experienced when I was younger, as well as the cognitive impairment and other symptoms. Several years later, when I was in college in Kentucky, I was also diagnosed with seasonal affective disorder (SAD), which could have a connection to migraine and contributed to the severe fatigue.

During the two years I was in Kentucky, I struggled with pain, nausea, fatigue and sometimes even cognitive impairment, making it difficult to have a normal social life and succeed in school. Medications I had tried before just made me sick, and I didn't know if I would ever find a treatment that would help me be "normal," whatever that meant for me. At the time, I just wanted to be free from the pain. But I didn't realize how many areas of my life were affected until I got better.

When I transferred to go to school back home, I spent the summer working with my doctor to find a treatment. Around the time school started, I was beginning to adjust to the medication that would change my life. I was starting at a new school, with a new major and hoping and praying that this time things would be different. I didn't really like high school, so I had always looked forward to college: the chance to start over, study things I actually cared about and get the real "college experience." Kentucky had been a bust, but going into my junior year armed with a medication that actually worked, I knew things could be different.

And things were very different. I was no longer afraid to be around people, worried of what they would think when I couldn't keep up with the conversation or it took me an unusually long time to respond to a question. I could go to events and meet new people, because I was there to have fun, not to merely survive until I could get back into bed. I could run for fun; I could go to parties; I could even speak up in class discussions, because I was able to follow them. That's when I realized how much I had been missing out on. It wasn't just the physical pain and limitations that had made things so difficult, I had also lost my personality, my passion and my ability to make connections with other people. I literally didn't know who I was. It was almost like meeting myself for the first time; I learned that I was actually an extrovert and loved meeting new people. I found a passion for fitness, running, biking and other outdoor activities. I joined a sorority and found out that event planning and fundraising was another passion of mine. I learned photography and picked it up as a minor, because why not? I took advantage of every opportunity I could, and I wasn't afraid to try new things.

When I ran across the Outdoor Mindset website, I had no idea there was already an organization that combined some of the things I care about most. I am now a trainer for Planet Fitness and I'd eventually like to specialize in working with clients who have neurological challenges and mental illnesses. I feel like I can relate to some of the challenges that those with neurological diseases face, and I know from experience how exercise can change lives.

I also know how important it is to be surrounded by people who care and support each other, especially when you're facing a chronic illness or disability. I was lucky to have my family and a few close friends by my side while I struggled with my illness, and I don't know what I would've done without them. That's why I'm so excited to be a part of Outdoor Mindset and grow a community in Ohio. Through outdoor activity and social connections, we CAN make a difference in the lives of those with neurological challenges!"

I was never totally sure I could do it. Until I did.

Whoa, get ready to smile like a proud parent over Julie's half-marathon success! I hope after reading this you're all ready to explore your limits, get outdoors, and connect with others who can help you not only during the hard times, but also share the good times. Congrats Julie!

September 17, 2012

Dear friends and family,

If the story ended with all peaches and cream that would be boring. So, between you and me, I'll tell you the real story. 

I ran my heart out; I ran 13.1 miles in my goal time of 2:00:04. 

This journey has been rewarding in every way possible. I started this adventure with a gut feeling, hope, desire, and idea and a new partner in Outdoor Mindset. I never considered running prior to this adventure. I always relied on the inside of a gym and a 45 minute work-out or in my former life a pool to stay in shape. You got a glimpse of a very personal side of my life, you started with me on this running adventure and getting outside and having an Outdoor Mindset and helping those with neurological disorders and stayed with me for 3 1/2 months until I ran a half marathon as I promised I would. I have to admit, I was never totally sure I could do it. Until I did.

I, we, raised over $7000.00 in honor of my Mom and the Remembering Robin ALS fund and have loads of people to thank for it. Family, friends, friends of friends, best friends and strangers that heard of the cause and wanted to help. So, I clearly raised awareness through the Outdoor Mindset blog and surpassed my monetary goal. Thank you all. 

Two amazing friends, Margaret Roscoe and Kourtney Matter surprised me and came to Sweden from the States the day before the big race. They are my right and left arms in life and this time they were my right and left legs. Kourtney was in the last 4 miles, I think, both my right and left legs as I was a hurting puppy and she made sure I got to that finish line at 2 hours. There is no way I would have done it without her there running. They are the best friends anyone could ask for.  

My husband has been my mental sanity and steady supporter for 3 1/2 months along with my kids when I started this adventure. I even got to hug them at the 12th Kilometer still smiling. And so many came out and cheered for me and Kourt on the race track. It wasn't until the 17th kilometer when digging deep was not a joke. And there in begins the aftermath, the reality for a first time runner going through this.

The race:

It was amazing. The weather was perfect. I mean truly perfect. I was telling someone, maybe you, that I was praying for great weather as I'm not really all that tough so I needed, wanted, hoped for the absolute perfect running conditions and got them. The race started. We took it out a little fast and felt good. Our goal was 2 hours. We were going to take it slow in the beginning to build reserves for later. But then we got cocky and wanted to catch up to the next heat in front us so we ran our hearts out. We felt fine. In fact I'd say we pretty much felt fine up until the 17th kilometer. Then we both started hurting. We started digging deep but we did stay on pace. Then I started to feel nauseaus around the same time. And a little delirious. It was waves of nausea, came and went, came and went and it didn't let up. My body was fine. Don't get me wrong, I hurt everywhere, my thighs, knees, mostly my knees actually, but it wasn't anything I couldn't get through. But my stomach. Not so much. Finally we rounded the final corner and saw that finish line. It was amazing. We crossed it, hugged and I haven't taken my medal off yet. Amazing, Kourtney was amazing - one tough runner, the buzz was amazing, the music, the crowd, the scene. I was relieved to be done. We walked to meet up with Erik, the kids and Margaret. We bypassed the massage booth and honestly I did it knowingly. I just wanted to get home.  

Dinner of Champions!

We hopped in the car and soon after getting home it came. Yup, full on dry heaving for 3 hours.  Thank goodness it was my best friends and husband who were seeing me in all my glory of dry heaving and not someone else. While Kourtney was jet lagged and just jumped in and ran and was fine - drinking Rose wine with Margaret, celebrating, having a grand ol' time. There was a party next door I was supposed to go to with all of my friends and just couldn't make it. All I wanted was to drink Champagne, celebrate with my husband and my two champion friends here from the states and party next door and I. Was. Sick. I had Marg google "nausea after running". Three things: 1) eating too much too close to the race (within 2 hours) That wasn't it. 2) dehydrated. I knew that wasn't it as I drank and drank and drank before and during the race. 3) drum roll...... Overexertion of the body. Bingo! That was it. I pushed my body past it's desired limit. I'm still a little mystified as I'm used to doing this. Back in my swimming days I did this daily. Well, I guess mama ain't 18 anymore. Well, I finally rallied later in the night and the only thing I could keep down was a bag of cheetos and a flat coke. I got to chat away with my friends and husband finally. At least I redeemed myself a little.

The lesson: I need to train my body it has to keep up with my mind and heart. Any ideas welcome. Cause I'm not backing down now. I will do this again. Save this space!

So there you have it. The full unabridged story in all it's glory. It was amazing, it was hard, I was sick and now I'm fine and I'm going to do it again.

I am blessed to have so many supporters that care about: my Mom and helping me fundraise for ALS research, Outdoor Mindset and what they aim to do now and in the future for all those living with neurological disorders and me during this journey. I am one lucky girl. Thank you from the bottom of my heart. 

I wasn't a runner so naturally I signed up for the Stockholm Half Marathon with a goal. And I'll do it again. My running, blogging, fundraising adventure has come to an end. The race is over and it's all done. I am wearing my medal and my Outdoor Mindset shirt with pride. I will no longer invade your in box or infiltrate your facebook pages with running clutter. Well, one more blog is coming out so I may peek my head in once more.

I hope you've enjoyed our journey together. I certainly have. Thanks for joining me in Remembering Robin. And you can always find me at www.outdoormindset.org. That journey for me has just begun.

Love,

Julie

Staying Centered

Tonight we have another chapter from Julie during her marathon training. This entry sheds a lot of light on the challenges and importance of being a Supporter of someone with a neurological challenge. At Outdoor Mindset, we understand this important role, which is why our Membership and programs are also for Supporters. Take is away, Julie:

Week of August 20, 2012 

Last night I went out for a run after my husband got home from work. It was a beautiful night and this is the most unbelievable place to run. This little town of Djursholm. By spring and summer there are running paths by the ocean, to the golf course, around town and by winter they are cross country skiing paths.

I saw a fellow trainer wearing the I'm Running for the Stockholm Marathon shirt. I felt cool, like I was in a club and she and I for a brief second knew we were in it together as we were running on the same path deep in the wood while seeing the water peeking out from between the trees. I was running as the sun was starting its descent. I felt like the animals were watching and guiding and helping me along. Does that sound weird? I feel weird having said it, but it's the truth. Maybe Outdoor Mindset is making me more outdoorsie after all. They are, after all, the guru's in helping all those people living with neurological diseases get out there and feel life, feel the elements, feel that they are not alone. The breeze, the smells of the dirt and leaves, the little chirping and scuttling of birds and other unidentified animals were all there talking to each other guiding me and my runner friend in those woods for that one stretch of path over 5 minutes or so. I'm not so outdoorsie but I was hoping for the rain to come. That would've rounded out my experience somehow. I talk to my mom out there, in my head of course. Not out loud. I don't listen to music, I like hearing the sounds around me and then I can also think a lot more and talk to Mom. Again, weird I know, but somehow it's comforting.

If only it was as easy as the push of a button...

I remember when she was sick I would go to the gym all the time. It was the way I let out energy and kept centered throughout her illness.  So, several years later, when I found Outdoor Mindset, I realized that they were in the process of creating something important; a community of people encouraging each other to use exercise to cope with the stress and the grief of caring for a friend or a loved one with a neurological disorder.  I saw immediately that OM was so aligned with my belief in exercise as an important coping tool; that their programs could be valuable tools for those fighting neurological disorders as well as those working through their grief.  So I decided to contact them and they matched me with a partner (across the globe, but close in life experience), encouraged me to find an outlet that was the most aligned with my needs (raising awareness and funding for ALS research) and continue to support me as I work towards my goals.

So, I run another day for you Mom, for me, for our family.  I run for all those living with a neurological disorder.  I'm thankful that Outdoor Mindset is out there with the hope of helping all of you affected by a neurological something.

Until next time,

Julie

Can Do? YES YES YES!

We are so excited to announce a new partnership with Can Do Multiple Sclerosis, an organization we have greatly admired from our creation and along every step of the way. Can Do MS is a leading provider of innovative lifestyle empowerment programs for people with MS and their support partners. Leveraging the powerful legacy and principles of former Olympian and organizational founder Jimmie Heuga, Can Do MS has helped thousands of people living with MS reclaim a sense of dignity, control and freedom by empowering them with the knowledge, skills, tools and confidence to transform challenges into possibilities.

What inspires us most about Can Do MS, and probably what connects us most deeply, as well, is their positive outlook on living with a neurological challenge. They say that by focusing on what you can do, their programs can provide a whole new way of thinking about and living with MS. And now, as a partner of Outdoor Mindset, we can focus on ways to do this together to serve all of our members!

We've made some great strides on being able to serve our community of MS Members, and our partnership with Can Do MS is going to provide us even more opportunities and insights on where we should go next. Here's a great story from one of our Outdoor Mindset Members and Guides living with MS, with a serious 'can do' attitude, who recently enjoyed a great hike with through OM Meet-Up Groups:

Sandy joined Outdoor Mindset looking for some hiking partners. Sandy is a massive and serious hiker and after being diagnosed with Multiple Sclerosis, continued her hiking passion using forearm crutches (along with doing some other awesome adaptive sports like monoskiing and handcycling!) She says she's still a pretty serious hiker, although she's had to adjust her expectations a bit with a slower pace. She's had trouble finding hiking partners because her pace is a little slower than the average hiker, however she can seriously hike all day - like 11 miles!

Sandy attended a recent Outdoor Mindset Meet-up Group doing the Twin Lakes Hike near Boulder, and here's what she had to say after:

"It was so wonderful for me to have such great company for a hike in one of my favorite places in the world. And I think we were so well matched as far as hiking ability! And how wonderful to have hiking companions that were not freaked out by my crutches and I wasn't the weird, disabled one trying to keep up with the able-bodied folks. Instead, I just was one of the group and it was so very lovely. Thank you so much for setting this up!"

And Sandy wasn't the only one feeling inspired that day. Another hiker from the Meet-Up group wrote in:
"It was good to spend time with others who have similar conditions.  And what an inspiration Sandy is -  wow."

I'd say that was a pretty exceptional day for all! We are SO thrilled to be able to help nurture this experience between our Members and can't wait to spread the love with Can Do MS, as well!

Don't forget to check out our Meet-Up Groups in:
Boulder, CO 
Hanover, NH
Cincinnati, OH 
...and more to come!

Jill

Sometimes you just need a giggle!

Life can be stressful… I don’t think anyone would deny that statement. With a dog post-ACL surgery waiting for me at home in a cone (which she hates!), the expenses and stresses of moving to a new town, and what seemed to be a slew of lame things happening to my friends weighing on my mind, I was walking home from work one evening when I passed the Bozeman Center for the Arts and noticed a strategic piece of graffiti that brought a smile to my face. Someone had spray painted a ‘F’ in front of the word ‘Arts’ on the sign outside the building so that the sign read “Bozeman Center of the Farts”. Immature – yes. Vandalism – also true. Funny – without a doubt! I found myself laughing the rest of the way home, and MAN IT FELT GOOD. For me, sometimes I just need a good laugh to help turn my mind and my day around, and I know the others on the Board of Directors for Outdoor Mindset feel the same way.

That is actually one of our main values we wanted preserve when creating Outdoor Mindset, to incorporate humor in all that what we do. We want to make people laugh and smile, despite any other neurological craziness going on in their lives. Sometimes we can be quirky… would anyone agree with that? I mean have you seen the video we submitted for the Cultivate Wines Non-Profit video contest, The Give?? (Oh yeah, and also, please vote for us here every day from now until June 30^th so we can win some moolah to spend on our Members!) I don’t think you could NOT crack a smile when a suited up Kyle Martin comes rolling down the road towards the camera and then almost runs right into the thing (right at the 1:15 mark for anyone who may have missed it. Your welcome, Kyle.)

Savanah doesn't think this is very funny... but...

So please, try to have a giggle. Sometimes you can’t just go out and find it when you need it, so let it find you, too. No matter what’s going on in your day, in your week, or even in your BRAIN, try to find a smile or some laughter somewhere out there because I promise it’s going to make you feel better.

“The most wasted of all days is one without laughter.”

- E.E. Cummings (<< See, it's not just me that thinks so... this famous guy backs me up)

Laughing all the way,

Jill

SPRING MADNESS!!

What season do you think is most productive for new ideas, adventures, and stepping out of the box? Is it Fall/Winter when leaves start to turn red/brown and then it gets to be -30* outside? Or is it Spring when flowers start to bloom, the grass turns from brown to green, and the sun is constantly shining outside? I’ll let you take a guess which season I’m leaning towards for my final answer. At Outdoor Mindset, we have a history of Living Big in the Spring. Way back when, when Outdoor Mindset first got started, a great majority of the Board took a trip to New Zealand in April of 2010. For two weeks we explored the South island, and backpacked, beach-camped and bungee jumped through that amazing country. You can check out our full adventure here. And while that seems like so long ago, and just like yesterday all at the same time, the Spring tradition continued last year, when we launched our first ‘March Madness’ fundraising campaign to help raise funds for our Guide/Traveler Program. This included activities including 5ks, huge Adventure Races, and even mustache growing to help spread to OM spirit.

So now here we are, Spring 2012, and how are we going to top ourselves this Sping? Well, there is LOTS going on at Outdoor Mindset, and that’s an understatement. We have two Board Members traveling the world for a year (and skyping in for Board Meetings from beautiful places like Thailand! Checkout their blog here) two Board Members about to take a 4 month adventure to Costa Rica, two moving out to Bozeman, MT (and taking OM with them!), two with new babies this year, Med school domination on the East Coast, and much much more. PLUS, we just hired our first part-time staff member (Welcome Patti!) to help expand and develop our membership programs, which is huge for us! AND, like that’s not enough, we just launched our new fundraising campaign, appropriately titled ‘Spring Madness’ to get people outside, trying new things, and join in on the fun that Outdoor Mindset likes to explore during the Spring Season, while raising funds for our Meet-Up Groups.


Check out our Crowdrise Page to see all the amazing things we’re doing for this Spring Madness campaign, and get involved in a project, or just flat out donate! Like I said, our focus for this campaign is to raise funds for our biggest 2012 initiative - Outdoor Meetup Groups within our membership program- to strengthen connections and inspire members to get outside. What a better way to build a connected Outdoor Mindset membership than to get outside together? Since many expenses go along with managing this program; such as the technology platform to manage events, labor costs associated with managing the program, outreach materials, food & beverage costs, rental expenses, etc., we’ve set at $10k goal for Spring Madness and need your help to reach that numbers. So come get involved, join in on the fun and start your own pattern of Living Big in the Spring… we wouldn’t have it any other way!

And just in case I wasn’t clear – GO TO THIS LINK NOW to join in on our Crowdrise Spring Madness event, donate, or for no other reason, just to see how cool we are. :)

Hope you're all having a great week - and Happy Spring!
Jill

Possibilities

If there's one thing we just love love LOVE (yep, 3x the love!) about our Outdoor Mindset Members, it's their 'Game On!" spirit that really inspires us the most. The desire and openness to do anything, be anything, and accomplish anything, despite any neurological hurdles that may stand in their way, really drives our organization to provide programs and services to these awesome people. One great example of this is Outdoor Mindset Member Jesse Horton, who wrote today's guest blog. Even the sky isn't the limit for Jesse... and by reading this you'll understand why he is who he is, brain tumor and all.

Here he goes:
Tonight was a full moon night. Cold, semi clear, and brightly illuminated. As a celestial event, I am often amazed by how many people fail to recognize this regular events passing. After all, it has an effect upon all of us that is often unrecognized, and in profound ways.  Growing cycles in agriculture which dictate for many growers when to plant and when to harvest. Tidal movements in the ocean which dictate when to leave a safe harbor, or when to enter one. A full moon always seems to be the highlight of the lunar cycle. Taking a moment to enjoy the sight is always worth it.

Tonight's full moon was especially opportunistic. It seems like I used to take more advantage of the light nights to get outside more. To go for a snowshoe, have a bonfire on the beach, and just enjoy the event on a regular basis. When my friends decided to cancel and stay inside tonight instead of go for a snowshoe, I almost plopped in front of the tv for dinner and a movie. Why I didn't though is at the essence of all this full moon talk.

I got some great news today. It was news I hoped for. But it was news that confirmed my fears could be laid aside for a while longer. My doctor called today and said that my brain tumor looks to be shrinking. It is supposed to be dead, but retains its presence for some odd reason. That it is shrinking, is indeed great news. Suddenly, the world was again full of new possibilities. Suddenly the air smelled sweeter. Howling at the moon was suddenly an excellent idea.

Possibilities. That is what this is about. Socrates in all his ancient wisdom decided that if one were to search for truth, all you had to do was to think critically, remove all the "wrong" ideas, and ultimately you would be left with the "truth". The problem with that though, is that to think critically all the time, you end up losing sight of the experience. You get stuck in a negative rut analyzing what is wrong, and not seeing what is right. You never get outside and enjoy the full moon because it is cold, you have a brain tumor, you are tired, your afraid of everything not "right".

When you find out you have serious health issue life become simple. It becomes about survival. Life and death stuff, what movies are made about. All the silly petty crap like what "lifestyle" you have, the car you drive, it all gets gently slammed into place in the time it takes for a doctor to tell you what's wrong. But what is amazing, is what things emerge from the chaos and rise to the top of the pile as important. As essential actually. It seems like the short list is really a list of what makes life important to us individually. Usually friends and family top the list, not house and job. "You never know what you've got till you loose it," is a classic saying, but it is truly a hard lesson to learn.

Some of the greatest people I know have lost nearly everything. But you wouldn't know it. They live life at a pace that is staggering to watch. They have been knocked down, and get back up rejuvenated to enjoy, appreciate, and share what they have, with a smile on their face. It seems like neurological disorders give you a choice. You can give up, or you can get up.

Outdoor Mindset is comprised of a group of people who appreciate what they've  got. Some almost lost it before they realized it. Some have learned to appreciate what they have by watching others. Either way, the emphasis in OM is about the possibilities. There are a million ways to appreciate whatever good health we have. It might be cycling across a continent solo. Or it might be going for a full moon walk with friends. Either way, the level of appreciation is the same. It is about taking each and every second, and making it count. Why go out and enjoy the full moon? Because you can. 
Jesse Horton
President and Chief Mischief Officer, Walt Horton Studios  

Hope everyone is having a fabulous day!
Jill

Determination

Here's an inspiring guest blog from one of our amazing Outdoor Mindset Members - Jonathan Houle - about living an extraordinary life! Hope everyone had a great Thanksgiving holiday!

And in case anyone is worried, don't fret folks- the winning Chili Cook-off recipe will be revealed soon on this blog. ;)

Enjoy!

Determination
I was 5 years old when my mom told me I was adopted. I thought in that moment that I was different and unique and I was determined at all costs to prove that from that moment on.

She was diagnosed with Cancer in The early 1990’s… I was playing with my toys in the family

room when she collapsed onto the floor. The ambulance showed up. There was obviously something wrong. The next thing I can remember is seeing my mom at Stanford Hospital. I approached her on her Hospital bed as the late afternoon sun shone through her window on to her blue fuzzy hospital comforter. She was weak, and she did not have any hair on her eyebrows. She had some kind of bandage wrapped around her head from where they cut into her temple to take out the tumor. She looked at me lovingly. I was scared and quiet.

She lived like a rock, tempered by the ebb and flow of my dad and my grandiose notions and crazy projects, though virtually unwavering in her views. I remember how she would not budge from her opinions and stood by them even if a different way seemed blatantly obvious to everyone else. We thought she was crazy.

Looking back, I can now see that we were the crazy ones. She simply stood for what she believed in, IN THE FACE OF ANYTHING, including cancer…

I was able to settle this with her the year before she passed. On a Friday morning, I called her and I apologized for being a jerk, and not listening to her. I told her that I loved her and that she was the only mom for me. She told me she loved me and that I was the only son that she could ever have.

To honor her, I will live nothing less than an extraordinary life…

Throughout the second half of her diagnosis I began to give myself over to the practice of Aikido. I wanted to escape as far away from what I considered to be a normal way of life. This is also why I moved to Bulgaria to be an apprentice in the discipline.

When we train in Aikido we push ourselves beyond the limits of our minds and what we think is physically possible for our bodies to accomplish. Bulgarian Aikido is a manifestation of my commitment to my Mom’s life and her perseverance in the face of physically crippling circumstances.

The doctors gave her 10 years. She lived 20 more years after that.

This is why I became a member of Outdoor Mindset…

I met Kyle at a networking event and we instantly connected given who he is and all of the good things that the organization is up to. I immediately saw an opportunity to contribute my experiences and to help people dealing with their own neurological disorders. I became a member of Outdoor Mindset to inspire others and to be a part of something greater than myself.

Jonathan Houle is the owner of Bulgarian Aikido in Boulder, CO and has been training in Martial Arts for 10 years. He is a Black Belt and Sensei. He has a B.A. in Psychology from Eastern Washington University and has been married for three years. Bulgarian Aikido offers discounts to Outdoor Mindset members. He can be reached at jonathan@bulgarianaikido.com.

Thanks to you

So as you all know by now, OM is in the middle of our huge March Madness event to raise as much money as possible in March through all sorts of creative activities. We've got a big Adventure Race, a couch potato-thon, a mustache growing event, the list goes on. Jill and I talked over and over about what we wanted to do. We tossed around the idea of running a marathon but decided that it might be a tad ambitious given the fact that we were both averaging about a mile a day. We decided a 5K might be a better place to start!

Next, we had to decide which 5K to run. Being the procrastinators that we are, we waited until about April 31st to get on the computer and really search one out. By this time our options were slightly limited. Out of the 5 available in March, we could both attend 2 of them. There was one that started at a bar and ran around the side streets of Denver, and then there was the "Stop TB" Trot. Although the bar run had its own unique advantages, we collaboratively decided that running for a good cause was more important to us. We also figured out that although Tuberculosis is mainly a disease of the lungs, it can also have strong impacts on the BRAIN as well. We were thrilled to figure this out and obviously excited about finally making a decision about our March Madness event.

Throughout the entire process of trying to find an event and then raise money for OM through these March Madness events, the best thing for me has definitely been receiving the feedback and support from so many people. I mean, the grueling training has been great too, but the enormous amount of people who have come out and shown their interest in OM has definitely been the best. I am constantly overwhelmed by how much care, interest, and support I receive from friends, family, and strangers when OM comes into conversations. At Outdoor Mindset meetings, we always talk about how great we think the things we come up with are, but we sometimes wonder how everyone else will feel? I must say that the feedback and support that I have received alone with my one event has been amazing. It confirms the fact that OM is on the right track and we really have something special going on here, and not just from the boards perspective, but from yours as well! So what I am trying to say is that Outdoor Mindset appreciates you! Thank you all for being who you are and supporting what you believe in. We are all so lucky to be a part of an organization that means something to us personally. It means so much to us that you are a part of OM too!

On the Right Track

I arrived in Denver last week and traveled to my previous hometown of Breckenridge, CO for some days of fun and time with friends before heading into the hospital for surgery. I was fortunate enough to meet up with a lot of special folks in my life there, ski into a mountain hut for a night, and enjoy five unbelievable powder days on my tele skis!

I’m replaying all these things in my mind as I type from my hospital bed. I have been in University of Colorado Hospital’s Neuro Monitoring Unit for the past six days after a successful craniotomy to place electrodes on the surface of my brain. Pretty amazing stuff.

I won’t lie, coming out of surgery feels like crap! You have to tough it out. My new costume has some pretty interesting perks and characteristics too. Imagine a hybrid character influenced by Lawrence of Arabia’s turban, Lord Gandolf’s beard, and the infamous droid C3P0’s intricate wiring. Yeah, that ought to paint an accurate picture of my get up.

Since arriving at the hospital I’ve been reflecting on the journey that brought me here. It’s been a humbling experience. My professional career has always been about serving others and now my situation is turned around. These past several months I have been extremely lucky to have my wife, family and friends helping me through every step.

My Guide Diane has always steered me straight from her own experience with her temporal lobectomy. She’s never once sugar coated things or held back important information. “It’s gonna hurt like hell Jake,” she told me once. Those words raised my nerves for a long time while traveling down this road. Now I’m here with a couple of floating sections of skull with wires poking out of my head, and glad she put things so bluntly! I’m prepared to face whatever the docs throw at me.

I’ve been telling every doctor, nurse and technician about Outdoor Mindset (OM) since I got my room here. Kyle brought over OM business cards and a way cool poster that our marketing folks have been working hard on. My wife Jeanie has put those things into good use while giving our room a holiday touch. We have lights, stockings, and ornaments!! Our room is now OM central. It’s pretty hard for the specialists not to ask about it. When they inquire, all the feedback I get is positive. Most are uniquely drawn to the Guide Program we are establishing.

Last week Kyle, my brother, and I patiently awaited ski patrol’s opening of the Lake Chutes at Breckenridge Ski Resort. If you hit it right, and are willing to boot hike up a steep ridge to access the terrain, there are plenty of fresh tracks to make in untouched snow. On that day I took advantage of everything I could get my hands on. As we descended the chute that day, each laying down our own set of tracks, a few things became really clear. I’m on the right track was my first thought. I couldn’t be in a better position going through this neurological surgery procedure thanks to Outdoor Mindset, my wife, family and friends. The second realization that hit me was just how impressive a set of tracks Outdoor Mindset is making as it starts choosing its own path as a non-profit organization. The board of directors has spent the last year working its tail off to make this organization real. We can see the first summit and the organization is on its way to helping a lot of people.

"Movement is a medicine for creating change in a person's physical, emotional, and mental states." ~Carol Welch

To be honest, I have no idea who Carol Welch is, but I think her quote represents well the spirit at last Sunday’s Strides for Epilepsy event. With over 2,000 people registered for the 5K run/walk, City Park in Denver buzzed with energy despite the almost constant downpour. People diagnosed with epilepsy and their friends, family, and health care providers came together to not only support the efforts of Epilepsy Foundation – Colorado, but to laugh together and feed the mind, body and soul through movement.

Outdoor Mindset is grateful for the opportunity (thank you, thank you Epilepsy Foundation-Colorado and Gail Pundsack) to outreach to folks at the event. After all – we believe in connecting people through a bond of shared diagnosis and outdoor adventure. Lucky for us, the cold, wet weather did not deter those supporting Epilepsy Foundation-Colorado.
We chatted with lots of people, made plenty of friends, gave away over 500 stickers and business cards, and cheered on our own Team OM (the brave Kellyn Glynn and Kyle Martin).

According to http://www.epilepsycolorado.org, epilepsy affects people of all ages and races, and represents one percent of the population in this state—over 43,000 people. Three million people in this country and 50 million people worldwide have epilepsy. While epilepsy is not the only neurological diagnosis that Outdoor Mindset embraces, it certainly hits home with many of our friends and family members.

Our first debut to the public went well and we look forward to many more outreach and partnership opportunities. Please let us know on Facebook if you met us at the Strides for Epilepsy event. We want to hear from everyone as we build our online community and shape the programs of Outdoor Mindset. Summer will officially begin soon and we hope to see you out on the trails, on the water or wherever adventure may take you. Keep on movin’ and may the outdoors be your medicine!

Connecting to Connect

On Monday afternoon I was lucky enough to meet Rebekah Koenigbauer, director of marketing for First Descents. We enjoyed some patio time and shared tips on marketing for rapidly growing non-profit organizations.

First Descents is committed to curing young adults of the emotional effects of cancer and empowering them to regain control of their lives by experiencing whitewater kayaking and other challenging adventure sports in a safe, fun and supportive environment. This inspires us at Outdoor Mindset because we hope to accomplish the same - We unite and inspire people affected by neurological challenges to live big through a common passion for outdoor adventure.

Rebekah and I discussed the possibilty of having a First Descents past-participant write for our blog or serve as a mentor in our program. To us, this would be huge. In a sense, our organization is connecting to other organizations in order to connect people affected by neurological challenges with one another.

Learn more about First Descents.

Home From a Great Adventure

On April 23, seven of our OM crew (and three friends of OM) embarked on a great journey to New Zealand. Our goal was to explore one of the outdoor capitals of the world, and NZ exceeded all of our expectations. We started the trip by flying into Christchurch and immediately getting out of town to Lake Tekapo and Braemar Station where we enjoyed the serenity of staying on a sheep farm (in the sheep shearer's quarters), taking in views of Mt. Cook, and going for an icy morning dip in the lake. It was the perfect way for us to start the trip with a clear head and then jump in our 10-passenger van that took us safely through the South Island for two weeks and on countless adventures.

Next we headed to Queenstown to gather supplies for our first NZ "tramp" on the famous Routeburn Track. Unfortunately, we were greeted in QT by rainy weather and news that the Routeburn was closed until further notice due to flooding. We weighed many options (including jumping a flight to Fiji!) and decided that we came all the way to NZ to experience a "Great Walk" and wanted to stick with that mission. The Department of Conservation informed us that our only option would be the Kepler Track, 3 hours southwest of Queenstown. The track would be twice as long (and arguably twice as difficult) as the Routeburn, but we were up for it!

Along the Kepler Track we encountered lots of rain (a sustained downpour for most), lots of wind, lots of laughs, and a few tears. However, I think we would all agree that the tramp was one of the most challenging and rewarding things many of us had ever accomplished. After each day on the track (about 10 miles and 4-5 hours), we were rewarded with magnificent views from our huts, delicious backpacking meals, woodburning fireplaces, and much-needed mulled wine. Even some of our most trying times on the track made for some of our favorite memories... Seems like I don't even need to point out the obvious metaphor for life here.

After the tramp, we headed back to Queenstown for showers, beds, massages, and BUNGY JUMPING! Queenstown is home to the Nevis Bungy, the world's highest jump, and an amazing canyon swing that is no less harrowing. Six of us opted for the bungy and four of us the swing. Luckily, we were allowed to watch one another take the plunge and vicariously experience the thrill over and over again.

The next day, we headed out on a 14-hour road trip through Wanaka and all the way up to Abel Tasman National Park. Surprising to most, we had a blast in the car with some good music and plenty of snacks. Our next stop was a campsite on the beach to which we were taken by water taxi. A boat dropped us off on our own private beach where we had some beers, green curry, a campfire, and tent sleeping under the stars. When we woke up, we enjoyed coffee and yoga on the beach before taking another great hike to our boat pick-up location. Along this path, we made a slight mistake when we took the low tide track during high tide and ended up wading in chest-deep water. Again - most trying time = favorite memory.

We ended our trip with three days in a luxurious home that overlooks the marina of Picton. We did a wine tour, some trout fishing, a boat trip around the sounds, and cooked some great family-style meals.

When it was time to catch our flight home, we were sad to leave NZ but knew that we had definitely made the most of our time there. The trip surely meant different things to different people, but it was a shared experience we will never forget. Read more about our trip at TrampingforTreatment.blogspot.com

Outdoor Mindset is Tramping for Treatment in New Zealand!

So a long, long time ago (ie November) when all of this brain stuff with Kyle was first going down, we got the travel bug. I say 'we', but Kyle was really the ‘mind’ behind this genius idea. After all, travel and adventure are sometimes the best medicine and that’s exactly what Kyle needed. In fact, that was what we all needed. We needed a two week, all out adventure to New Zealand and we wasted no time planning this excursion. Before we knew it, we had racked up 10 amazing friends and individuals (7 of who are on the Board of Directors for Outdoor Mindset!) who were ready to buy tickets for this trip. We booked our tickets in February and immediately started a countdown for our departure.

Along the way, we tried to figure out exactly what we wanted to do while in New Zealand, but the truth of the matter was we wanted to do it all! So we decided to dominate just the south island, and pack in the activities. We fly into Christchurch on April 25th and jump in our 11 person van with a gear trailer and take off to Braemar Station, where we’ll be staying in the sheep shearer’s quarters overlooking the lake. The next day we drive to Queenstown and hit the Routeburn Track for 3 days! The Routeburn track is one of the “Great Walks”, so we’re really excited to see what all the hype’s about. After 3 days on the trail, we’ll go to Milford Sound for the night after our hike and take in all the beauty it has to offer. Then it’s back to Queenstown to do some crazy adventure stuff for a couple of days and pick up David (the 10th member of the group!) The second week of the trip is our PIBE week (Play It By Ear- Kyle’s favorite saying). Here are the things we KNOW we are doing at some point or another: staying at a Schoolhouse hostel in Okarito, driving up north and hiking/exploring along the way, see some whales and dolphins, drink some wine, hike and play, etc. The last 3 days of the trip, we’ll be at this amazing beach house in Picton where we are right on the water, down the street from wineries, hiking, and relaxation!

This trip is so appropriate at this time because things have been so hectic lately for all of us: moving, bills, brains, work, car problems…. This list can always go on. But the one thing that’s truly amazing is that we can put ALL that stuff on the back burner for two weeks and experience a beautiful place we’ve never been before. We can laugh at the funny accents (no offense anyone), enjoy the amazing scenery, hike in the beautiful mountains, and get to our ‘zen place’… the outdoors. That’s the one bond that really pulls us all together and makes us all so passionate about Outdoor Mindset and the benefits it can bring to individuals facing challenges in their lives. Think of this trip to New Zealand as a ‘test kitchen’ for Outdoor Mindset. While living the active, adventurous lives we all love, we want to see how far removed we can get from the pain-in-the butt portions of our lives and evaluate the benefits we will undoubtedly receive from this trip. Wish us luck…. I think this research is going to give us positive results.

Bon Voyage!