Saturday, December 4, 2010
Heads up doc, I’m ready to go!
My participation and belief in the vision and mission goes way beyond fulfilling a personal philanthropic ideal. I was diagnosed with epilepsy when I was eleven. My family figured it out when I fell off a horse as a kid. My dad is a doc, and he was pretty sure he just witnessed a seizure. When they took me to the neurologist and ran some tests, sure enough, I was diagnosed epileptic. At the time, the diagnosis didn’t really affect me. I went on living my life, doing all sorts of crazy stuff on bikes, skateboards, snowboards, and playing hockey with no limitations.
Having epilepsy never had significant negative effects on my life since the majority of my seizures happen while sleeping. I won’t lie to you. The ones I do have while awake are pretty embarrassing. Particularly when I’m on the ice during a hockey game, drop in front of a crowd unexpectedly, slide across the ice shaking, and slam hard into the boards! Well, I guess for spectators it could be rather entertaining.
My epilepsy has never been controlled. I have failed medication after medication. Weekly seizures have been a part of my life for the past twenty-seven years. About two years ago I began to notice some changes in the presentation of my seizures and things that were WAY out of the ordinary for me. My memory began to fail, I had trouble concentrating, and I started having anxiety and panic attacks. Something was definitely up! I was referred to a team of specialists in Denver, CO. They put me on a ‘cocktail’ of multiple meds, but the seizures persisted. Then they mentioned brain surgery as the best next option. They wanted to take out a part of my brain. Now that freaked me out!!
After a long indecisive contemplation of which way to move forward, I opted to have the surgery. To my surprise, a few board members at Outdoor Mindset knew someone who went through the same situation I am facing now. Her name is Diane Van Deren and she had a temporal lobectomy ten years ago. Diane is currently a professional adventure athlete sponsored by The North Face. Now fully recovered, she travels the world and competes among an elite field of endurance athletes. I can't tell you how valuable her friendship, advocacy, and first hand experience has meant to me over these past several months. Diane's support, spirit and determination are an inspiration to me. She shoots me straight from her own experience in what to expect from the surgery, what to anticipate throughout the recovery process, and how it has impacted her quality of life.
The new Guide Program that Outdoor Mindset is launching is the real deal! Diane’s and my relationship is a testament to what a difference it makes to have support from someone who knows the ropes of neurological diagnosis.
Diane, Kyle, and I are headed on a hut trip in the central Rocky Mountains of CO for a day of backcountry skiing the night before I head into the hospital. I figure after that I can walk through those front doors with an ear-to-ear grin, goggle tan, and powder burned face that says ‘BRING IT ON’! Once it all goes down I hope to become a Guide myself, and offer my own experience to someone who needs support. Check out Outdoor Mindset and our Guide program - we’re gonna be big!
Tuesday, November 30, 2010
The Book: Mindfulness by Ellen J. Langer, Ph.D
The books title: Mindfulness by Ellen J. Langer, Ph.D. A Professor of Psychology at Harvard University and the author of The Power of Mindful Learning. As I started reading it, I was quickly hooked. I often find myself doing things out of habit, or mindlessly. Some days I make it to work without even really remembering the drive. This book speaks about being mindful of your actions and surrounding. It has some fantastic real world examples of what can potentially happen if you are mindless (or on autopilot). Below is a quick excerpt from the book. No lead in necessary, it will tell you the story.
“My first experience of the grave risks of mindlessness occurred while I was in graduate school. My grandmother complained to her doctors about a snake crawling around beneath her skull and giving her headaches. Her descriptions were vivid and figurative, not literal. That was just the way she talked. But the young doctors who took care of her paid little attention to what this very old lady from another culture was telling them. They diagnosed senility. Senility comes with old age, after all, and makes people talk nonsense. When she grew more confused and unhappy, they recommended electroconvulsive therapy (“shock treatment”) and convinced my mother to give her approval.
Not until an autopsy was performed did anyone detect my grandmother’s brain tumor. I shared my mother’s agony and guilt. But who were we to question the doctors? For years afterward I kept thinking about the doctors’ reactions to my grandmother’s complaints, and about our reactions to the doctors. They went through the motions of diagnosis, but were not open to what they were hearing. Mindsets about senility interfered. We did not question the doctors; mindsets about experts interfered.”
Just think about it.
~Kelli
Thursday, November 25, 2010
Muchos Gracias
Now, the true roots of how Outdoor Mindset was built. For several weeks after my first doctor visit, connecting the dots was a focus. I continued to see how random occurrences would collide and shed light on some type of master plan. As I met with several friends, a few big items surfaced:
• Holy smokes I’m lucky to have such great friends
• Each have their own talents to bring to the table
• All have a sense of altruism, a tie to people facing neurological challenges (or face one themselves) and share a love for outdoor adventure
• Sometimes we’re inappropriately funny....even more of a reason to start an organization.
Over the last year, then entire group worked together to build OM. Jake would talk about his will to encourage people to overcome the stigma of a diagnosis by living big, Eric would tell stories of how the opportunity to give back to someone with a similar diagnosis has been a driving force since a tumor changed his life, Chris would discuss how being outside and active tunes him into the world and inspires...the list goes on and we were 13 people strong, nothing was going to stop the brain train. Through these “brainstorming” (sorry, I can’t stop) sessions, a couple of needs surfaced:
• When you’re addicted to an active, outdoor-loving, adventurous life and you are hit with any diagnosis of the brain; immediately you’re confronted with the question “can I continue to live this way of life that I love so much? bike, ride, run, climb, etc... How do I really know?
• Then, many begin searching (mostly on the Internet) for information on next steps. What are the doctor conversations going to be like, what now, treatments, relationships, how do I tell my friends/family, etc. Tons of research papers, forums, support groups, and statistics are out there. But, how do I truly navigate?
We realized the first opportunity for inspiration wasn’t about research papers or statistics, but it was about connecting with someone that has the same diagnosis and a mutual passion for the outdoors. I’m a sucker for quotes and one of my favorites is “Don’t measure the size of the mountain, talk to the one who can move it.” Or in this case....has moved it....or is moving it.
We’re trying really hard to make sure newly-diagnosed folks (Travelers) never feel like they are all alone locked in an outhouse.....sort of like Kellyn was during our board retreat back in July:
Outdoor Mindset is an organization focused on building programs (our “Gear”) around those needs and embracing that opportunity for inspiration. We will do that through our Guide Program, an Online Community, Adventure Programs and Regional Events. We’re using this day of thanks to officially launch our Guide Program. Check out www.outdoormindset.org/gear for more information. Join the brain train (there I go again) and either register now to become an OM Guide/Supporter/Traveler or spread the word!
Many people believe in the route we’re taking and have joined us by Donating as well. If you are one of those folks, we thank you from the bottom of our hearts (and brains) and guarantee that every dollar, every cent, will go towards our Gear focused on our Summit/Powder Day/Big Fish of envisioning a community of individuals affected by neurological challenges leading active lives with no limits. We strive to change people’s perspectives of a neuro diagnosis! And dog gonnet, we plan to do it.
To our friends and family, thank you for not saying those 11 little words when this all began:: “Are you freaking crazy? Starting a non-profit in this economy...seriously?”
To that original group of folks that built OM and continue to volunteer their time and money (you know who you are), I can’t thank you enough for being along for the ride, believing in our mission, acting on it with such passion and building an organization that I know, I know it in my heart, is and will be amazing with the ability to help so many.
With my serious face on a for a bit, I look back with a heavy heart remembering how many people were affected by my personal situation. Friends, family members, work colleagues, etc.; all of which stood beside me over the last year. My journey continues, but my appreciation for this support is unexplainable. Btw, not necessarily the let’s sit in a room and talk about it support; but the let’s climb a mountain, travel to New Zealand, snowboard behind a horse and live it up support! I’m humbled my how lucky I am in this amazing life.
We give thanks for powder days, killer mountain bike single-tracks, fly hatches that yield big fish, high mountains that instill a sense of accomplishment, rapids that provide a gateway for kayak thrills, winding mountain roads that make it cool to wear spandex and for access to the outdoors that allow all of these things to be possible.
We give a huge thanks to all of those folks that provide inspiration to us. The list is long, but includes the many people that have either beaten a neurological diagnosis or currently manage their situation successfully by continuing the way of life they love despite whatever challenge is tossed their way. Through commitment and strong will, so many people ensure an obstacle related to their health is not who they are; but merely something that exists as part of their life. I often blurb that some people have a bad back or knee; I just happen to have a bad brain. To me, that is the key; realizing we’re all part of something bigger and embracing the amazing opportunities that any obstacle places in front of you. To the inspirational people that make this a reality; thank you so much for your determination. Oh yea, we think a shared passion for outdoor adventure is a core element to this type of mindset as well. Get it? Outdoor Mindset...
Here’s to exploring, enjoying and being thankful for the journey.
KM
Thursday, November 18, 2010
The best way down isn’t always the easiest way up.

After taking a few runs on Peak 8 with nice groomed trails and long lift lines, a crew of us (some OM’ers and some friends) decided we wanted to check out the unopened Breck terrain of Peak 10. We were lucky enough on Saturday to even drive up to the Falcon Chair, which gave us a head start on our hike. Putting one foot in front of another while battling our way up Peak 10 and sweating in our multiple layers despite temperatures in the teens, we climbed around 1000 vertical feet in an hour to get to some untouched snow… POWDER, if you will! J That’s every skier and rider’s dream in early November! Every step of the climb was worth it, when you looked down at the untouched run with no one on it, knowing that you were about to be floating on top of the powder on the way down.
It was so amazing that we wanted to repeat the experience on Sunday (before we watched who was going to get the coveted W between the Bills and the Lions). When we tried to drive up to the Falcon chair again, we found snow guns in our path. The way up wasn’t going to be as ‘easy’ as the day before, but we didn’t let that get in our way. We took a different route, and hiked up to the Peak 9 restaurant to hit some more new snow. Different and more difficult route up, but with another amazing way down. See for yourself:
Here’s to looking forward to more hikes up the hill and more powder on the way down! Can’t wait to see you all on the slopes this winter and get some runs while talking about what Outdoor Mindset is up to!
JillThursday, November 11, 2010
It’s not about the destination, it’s about the journey

When you read this quote, one you’ve heard over and over, what comes to mind? Do you read it and think, “Yeah, I know that” or “Sure, makes sense” or “What-ever, sounds pretty idealistic”.
For me, I’ve read that quote and answered yes to all three thoughts at one point or another in my life. The challenge for all of us I believe though is to be in the present, to challenge ourselves with full life experiences, to relish them while we are doing them and to reflect back on them when we’ve hit our destination. Whether your destination is a hike like mine to the historic, spiritual place of Machu Picchu or a destination like taking control over your diagnosis of a brain abnormality the quote is quite poignant. For Outdoor Mindset and its members, the destination (the large one) is to take control, to understand, to share and to grow. Outdoor Mindset can be the springboard for making those connections with others who have experienced the journey you find yourself or your loved one or friend on right no.
I find myself reflecting back today on a recent trip to Peru. My wife Libby and I set out on a trek, a journey to visit Machu Picchu in Peru. In all the planning and pre-trip wonderment I found myself getting very excited for our arrival at this historic and majestic place. I built up a vision of the feelings I would have when we arrived. Feelings of accomplishment for having made the long journey, feelings of wonderment at how the Inca created such a massive, intricate and connected place with tools made only by hand and moved by man. All of those expectations of mine were met but one expectation that I was missing became the most important of the event. I had spent little time thinking about what the actual trek, the journey, would be like. This was actually a gift I think because as I reflect back on the trip as a whole; the experiences, the sites along the trail, the waking up to breakfast in our tent, the many ruins scattered along the 30+ mile trail, my amazing traveling partner (my wife) were the most rewarding of the entire event.
My hope in writing this is to share how my recent traveling experience started out with me focused on the destination; ready, waiting to be blown away, to be amazed and surprised upon reaching my destination. Now, looking back I fully realize that the experience and the fulfillment which I will remember for a long time came not so much from the destination but from the journey itself. I encourage you to seek to find the joys in your daily journey toward your life, your friends, better health, and a sense of control over your life and your diagnosis. I wish everyone the best and as a side note, I HIGHLY recommend a visit to Peru and a hike on the Inca trail. (my next blog will share the specifics of the amazing hike, the landscapes, people and history of the Inca Trail)
Thursday, September 30, 2010
3 . . . 2 . . . 1 . . . LIFTOFF
Outdoor Mindset has officially launched! Yipee! We have been talking about this day for months now, and I am so proud that we are finally here! Thanks for everyone’s support this past weekend at Foothills Community Park. The Chili Cook-off was a huge success! We raised $2,000 dollars for our organization that unites and inspires people affected by neurological challenges to live big through a common passion for outdoor adventure.In concepting our first event, the marketing team pitched many ideas to the board, but in the end, everyone agreed on the Chili Cook-off idea. Every board member was to bring a chili and we would invite friends and family to come and “vote” for their favorite! Uniting food, friends and the outdoors was a perfect fit for our Launch event. “Let the competition begin!” was heard from Boulder to Breckenridge. And then of course the trash talking began . . . .
THE CONTENDERS1. Boyd’s Heart Healthy Turkey Chili
2. Jill’s White Bean Green Chili WONDER!!!
3. Brian’s White Chicken Chili
4. Kyle’s Hot + Healthy Bubblies!
5. Adam’s Insanity
6. Kellyn’s Turkey - NO BEAN
7. Sara’s Texas Bowl O’ Red
8. Heather Tarantula Tom’s Steak Chili
9. Eric’s Turkey Green Chili
And the winner is . . . . . . KYLE! with a close second going to ERIC.

Thank you to our sponsors who helped with the event. The OM board members for providing chili and condiments, New Belgium for providing the frosty beverages and Eco Cycle for the composting containers- keeping the event zero-waste!
Thanks again to everyone who came and donated! We are already looking forward to the next OM event to come so stay tuned . . .Wednesday, August 18, 2010
Hut Trip Recipe’s from the Board Retreat
I would like to thank Cooking Light for the inspiration and recipes below. I tripled these recipes for the 12 of us. For the hut trip and ease of transport in our packs, I made the sauces & dressings ahead of time and prepped most of the veggies and chicken. Don’t forget to hand out a bag of ingredients to each hiker to “spread the love” of additional weight. Also never forget wine for the chefs while they are cooking!
Ingredients (Serves 4)
2 Cucumbers (seeded)
1 teaspoon salt
1 tablespoon sugar
1 tablespoon soy sauce
¼ cup Rive Wine Vinegar
1 teaspoon sesame oil
2 teaspoon toasted sesame seeds
Preparation
1. Cut Cucumbers. Mix next 5 ingredients for dressing. Top with sesame seeds.
2. Cover and chill for 20 min.
Thai Rice Noodles with Chicken (Hut Trip Style)
Ingredients
1/4 cup fresh lime juice, divided
1 rotisserie chicken. Shredded.
8 ounces 1/2-inch-thick rice noodles
1 tablespoon brown sugar
1 tablespoon water
1 tablespoon fish sauce
1 tablespoon low-sodium soy sauce
1 1/2 teaspoons fresh chile paste with garlic (such as sambal oelek)
1/4 teaspoon salt, divided
4 teaspoons canola oil, divided
3 tablespoons thinly diagonally sliced green onions
1 teaspoon grated peeled fresh ginger
1 teaspoon minced garlic
1/2 cup torn fresh cilantro
½ cup of each carrots, onion, bell peppers, napa cabbage, broccoli, mushrooms
2 cup spinach
Preparation
1. DAY AHEAD: Shred rotisserie chicken and pack in zip locks, then freeze overnight (best for transport and food safety!)
2. Soak noodles in hot water 15 minutes or until somewhat soft but still slightly chewy. Drain well.
3. Combine remaining 2 tablespoons lime juice, sugar, and next 4 ingredients (through chile paste). Stir in 1/8 teaspoon salt.
4. Heat a large wok or skillet over medium-high heat. Add 1 teaspoon oil to pan; swirl to coat. Add green onions, ginger, and garlic; stir-fry 45 seconds or just until golden and fragrant. Add the rest of the veggies in order from longest cooking times to shortest. I did carrots and bell peppers. Then steam the broccoli, napa cabbage, mushrooms & shredded chicken in the same pan as everything else. Last but not least for the veggies- the spinach! Add noodles; cook 30 seconds, tossing well. Stir in sugar liquid mixture. Top each with 2 tablespoons cilantro.


