While Outdoor Mindset’s official incorporation date is April 15th (ish), those closest to the action realize the wheels were in motion starting November 2009. Reflection of the last year and being thankful for all that it has been is key during this holiday week. My health challenges and Outdoor Mindset are no exception to this. How did it all go down from my perspective? Last year, a few strange things, mostly related to numbness in my right arm and leg, led to a doc visit that wasn’t your typical turn your head and cough type of day. When I was told there was a possibility of Multiple Sclerosis, then later diagnosed with a brain tumor (Punkus Uncus *not an official term); I knew my brain was officially BUSTED. Anger and self-pity did not exist, but I did have an ever present fire in my gut that was not about facing my own mortality, but was about the reality of dealing with a neurological challenge that could potentially hinder the active way of life that I love. It was personally life-changing and tough to absorb, but even more so it was mind boggling to think of the many others that are faced with that reality every day. So many folks share an addiction to live life to the fullest, enjoy the outdoors and strive to find adventure in every moment. This core lifestyle and the fear of losing these opportunities is top of mind anytime a medical challenge involving the brain is diagnosed. As I traveled the journey of owning my diagnosis and the process involved, a void of an easy way to connect with others that have gone through a similar challenge while continuing to enjoy an active way of life surfaced. I was lucky enough to have a great friend (OM’s lead finance dude, Eric) guide me through the process. We now share the same neurosurgeon, continue to bike together and sit on the OM board with this experience in our back pocket. I can truly say that having Eric as my Guide helped direct my situation towards a positive path.
Now, the true roots of how Outdoor Mindset was built. For several weeks after my first doctor visit, connecting the dots was a focus. I continued to see how random occurrences would collide and shed light on some type of master plan. As I met with several friends, a few big items surfaced:
• Holy smokes I’m lucky to have such great friends
• Each have their own talents to bring to the table
• All have a sense of altruism, a tie to people facing neurological challenges (or face one themselves) and share a love for outdoor adventure
• Sometimes we’re inappropriately funny....even more of a reason to start an organization.
Over the last year, then entire group worked together to build OM. Jake would talk about his will to encourage people to overcome the stigma of a diagnosis by living big, Eric would tell stories of how the opportunity to give back to someone with a similar diagnosis has been a driving force since a tumor changed his life, Chris would discuss how being outside and active tunes him into the world and inspires...the list goes on and we were 13 people strong, nothing was going to stop the brain train. Through these “brainstorming” (sorry, I can’t stop) sessions, a couple of needs surfaced:
• When you’re addicted to an active, outdoor-loving, adventurous life and you are hit with any diagnosis of the brain; immediately you’re confronted with the question “can I continue to live this way of life that I love so much? bike, ride, run, climb, etc... How do I really know?
• Then, many begin searching (mostly on the Internet) for information on next steps. What are the doctor conversations going to be like, what now, treatments, relationships, how do I tell my friends/family, etc. Tons of research papers, forums, support groups, and statistics are out there. But, how do I truly navigate?
We realized the first opportunity for inspiration wasn’t about research papers or statistics, but it was about connecting with someone that has the same diagnosis and a mutual passion for the outdoors. I’m a sucker for quotes and one of my favorites is “Don’t measure the size of the mountain, talk to the one who can move it.” Or in this case....has moved it....or is moving it.
We’re trying really hard to make sure newly-diagnosed folks (Travelers) never feel like they are all alone locked in an outhouse.....sort of like Kellyn was during our board retreat back in July:
Outdoor Mindset is an organization focused on building programs (our “Gear”) around those needs and embracing that opportunity for inspiration. We will do that through our Guide Program, an Online Community, Adventure Programs and Regional Events. We’re using this day of thanks to officially launch our Guide Program. Check out www.outdoormindset.org/gear for more information. Join the brain train (there I go again) and either register now to become an OM Guide/Supporter/Traveler or spread the word!
Many people believe in the route we’re taking and have joined us by Donating as well. If you are one of those folks, we thank you from the bottom of our hearts (and brains) and guarantee that every dollar, every cent, will go towards our Gear focused on our Summit/Powder Day/Big Fish of envisioning a community of individuals affected by neurological challenges leading active lives with no limits. We strive to change people’s perspectives of a neuro diagnosis! And dog gonnet, we plan to do it.
To our friends and family, thank you for not saying those 11 little words when this all began:: “Are you freaking crazy? Starting a non-profit in this economy...seriously?”
To that original group of folks that built OM and continue to volunteer their time and money (you know who you are), I can’t thank you enough for being along for the ride, believing in our mission, acting on it with such passion and building an organization that I know, I know it in my heart, is and will be amazing with the ability to help so many.
With my serious face on a for a bit, I look back with a heavy heart remembering how many people were affected by my personal situation. Friends, family members, work colleagues, etc.; all of which stood beside me over the last year. My journey continues, but my appreciation for this support is unexplainable. Btw, not necessarily the let’s sit in a room and talk about it support; but the let’s climb a mountain, travel to New Zealand, snowboard behind a horse and live it up support! I’m humbled my how lucky I am in this amazing life.
We give thanks for powder days, killer mountain bike single-tracks, fly hatches that yield big fish, high mountains that instill a sense of accomplishment, rapids that provide a gateway for kayak thrills, winding mountain roads that make it cool to wear spandex and for access to the outdoors that allow all of these things to be possible.
We give a huge thanks to all of those folks that provide inspiration to us. The list is long, but includes the many people that have either beaten a neurological diagnosis or currently manage their situation successfully by continuing the way of life they love despite whatever challenge is tossed their way. Through commitment and strong will, so many people ensure an obstacle related to their health is not who they are; but merely something that exists as part of their life. I often blurb that some people have a bad back or knee; I just happen to have a bad brain. To me, that is the key; realizing we’re all part of something bigger and embracing the amazing opportunities that any obstacle places in front of you. To the inspirational people that make this a reality; thank you so much for your determination. Oh yea, we think a shared passion for outdoor adventure is a core element to this type of mindset as well. Get it? Outdoor Mindset...
Here’s to exploring, enjoying and being thankful for the journey.
Thursday, November 25, 2010
Posted by Unknown at 2:38 PM
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What a blessing and inspiration you all are! We are also learning that you all have a bit of a twisted sense of humor. :) Happy Thanksgiving as OM moves to helping more & more people.ReplyDelete
Just now reading this. You truly are an inspiration (and twisted). Proud to be part of your family.ReplyDelete