Katie McCurdy is a new Outdoor Mindset member, who recently attended the NH Meetup hut trip. She enjoyed meeting new people, talking about neurological challenges, and spending time in the outdoors! We appreciate Katie sharing her experiences.
We made our way along a snowy trail in the woods of New
Hampshire, a small train of 6 backpack-toting, sled-pulling women (and one
man). The area was still recovering from an ice storm, so beneath the inch or
so of snow was a thin layer of glare ice, which we navigated and slid along
until we reached the ’66 Dartmouth cabin. The log cabin was more like a lodge;
what I imagine an old logging camp in Northern Michigan (from where I hail)
would have been like. It had a giant main room with a wood stove and fireplace;
multiple sleeping lofts piled with those humorous vinyl-coated camp mattresses;
gas lanterns and moose paddles hanging throughout. It was rustic and
charming.
My companions were a group of mostly strangers, members of the
Outdoor Mindset community in the Hanover, NH area. Outdoor Mindset’s goal is to
help patients with neurological conditions spend time in the outdoors, doing
activities they love. My old friend Jeanie had invited me to the outing; we’d
been co-captains of our college ski team back in the 90’s, and Jeanie’s now in
med school at Dartmouth. Her husband, Jake, is a co-founder of Outdoor
Mindset.
Most of the people on the outing were patients with various
neurological conditions like MS and epilepsy, and one woman had multiple autoimmune
issues (like I do, but hers were different from mine.) I don’t think they knew
I was a patient at first, as I was kind of a random and unexpected addition to
the trip, so my pointed questions about their symptoms and diseases might have
been a little off-putting at first. But as we walked through the woods, first
on our way to the cabin and then from the cabin to the top of a small mountain
lookout nearby, we spent a lot of time talking and getting to know each other.
I found that many of us had symptoms in common - even if our diseases were
different. A lot of us talked about neuropathy - tingling and numbness in our
extremities. The conversation swung seamlessly between health talk and outdoors
talk; from the cost of healthcare to a hiking trip at Kilimanjaro; from
treatment options to a climbing trip or a trek through the Indian
Himalayas.
Now these are my kind of people! Maybe just a ‘little tiny bit’
noncompliant patients who don’t always accept the limitations of their
diseases. Who push themselves to spend time outdoors and find ways to mitigate
the impact their symptoms might have on their abilities. I’ve had the
autoimmune disease Myasthenia Gravis for over 20 years, and I’ve recently been
diagnosed with Sjogren’s Syndrome as well - both neurological autoimmune
diseases. But I’ve always been able to maintain an outdoor lifestyle; I was a
ski bum in Montana for a few years, and I’ve lived/hiked/skied in VT for about
8 years. I understand what it’s like to push through symptoms to get outdoors and
keep up with the activities that make you feel alive.
Later in the evening, a friend of Jeanie and Jake’s came to the
cabin and taught an intro class on Pilates. She was hilarious and a great
teacher, and we worked on our ‘six packs.’ Jeanie and the dinner crew made a
great meal, and we spent time chatting into the night over a shared bottle of
wine and some cream cheese brownies. I shared a personal project I’ve been
working on that aims to help patients tell better stories about their
healthcare when they’re visiting with their doctors, and I got some good
feedback and input from the group.
Overall,
I was so pleased to have the chance to refresh my mind and body in the woods
with some like-minded patients. I’m excited to have now joined OM officially, and
I’m hoping to make it to more events and to help spread the word up here in VT!
